The Lens of Genetic Disease This is a poignant blog written by a mom with a daughter diagnosed with Batten disease. The incredible part is that her daughter and another of the girls mentioned in the blog were treated with a rapid gene- therapy and may be cured of their disease. This is a reflection on that journey, the hope, and the worry.
Topics: Grief / Perspective
The Problem with Race-Based Medicine (14min) Global scholar, University of Pennsylvania civil rights sociologist, and law professor Dorothy Roberts exposes the myths of race-based medicine.
People Like Us: How Our Identities Shape Health And Educational Success (35min) A Hidden Brain podcast (35 min) looking at how we scan every patient situation - both as a the physician and the patient - looking for safety and connection. Race turns out to be an important factor in how these are established.
I'll Get That Checked Out Soon In busy professional lives, and in an area where burnout is a hot-button item, our lack of self-care can lead to health care practitioners not really practicing what they preach. The consequences can be fatal.
Topics: Burnout / Mindfulness / PerspectiveKeywords: burnout / perspective / self-care
Myths about physical racial differences were used to justify slavery — and are still believed by doctors today.
The Curbsiders: LGBT health Build your knowledge base to improve primary care for LGBT patients! This episode is chock full of clinical pearls and updates for LGBT health from SGIM presenters, Dr. Jenny Siegel (Boston University) and Dr. Megan McNamara (Louis Stokes Cleveland VAMC). They define common gender identity terms and provide tips on how to take a sexual history. You’ll develop an approach to the unique clinical concerns of LGBT patients and learn how to phrase medical information in a gender neutral framework. This is a must listen episode for all health care providers!
Topics: LGBT / Sexuality
Finding Emilie Imagine if you were in a tragic accident that left you unable to communicate to the outside world that you were alive. Imagine if you were this person's loved one, and you tried to convince the doctors that your loved one was still alive. This is the triumphant story of two family members not giving up on their loved one even though doctors made a brain dead prognosis.
Why veterans have intimacy issues - by Lee Woodruff Journalist and Author Lee Woodruff, whose husband sustained massive injuries from a roadside bomb while reporting in Iraq in 2006, discusses what is, and especially what is not, being openly discussed about the difficulties of sex and intimacy for wounded warriors.
Blogs by Dr. Mitchell Tepper- Sexologist with focus on the disabled Dr. Tepper, who has had a spinal cord injury for over 30 years, focused professionally to ending the silence around sexuality and disabilities. He has been with working with wounded warriors since 2006. Explore the two websites for various resources for 'regaining that feeling'
Sex and Love in Retirement For the elderly residents of Flushing House, finding one’s soul mate is something of a quaint notion. Mating, however, is not. Forming new relationships in the nursing home.
Elderly Couples Dance to their Wedding songs Four elderly couples, some traditional some non-traditional, dance to their wedding songs and describe how they met, when they married, how their relationships have evolved over time and what their marriages mean to them now.
The Next Part This beautiful, 17-minute documentary film offers a glimpse into the challenges faced by a wounded warrior and his wife as they wrestle with the uncertainty of the future of their family.
Suleika Jaouad “Health is about adding life to years, not years to life.” A personal website discussing various events, interactions, struggles and celebrations living with cancer and surviving afterwards.
Life, Interrupted by Suleika Jaouad Cancer is not a gift, especially not at 22. But it can change you, prompting you to learn a few things along the way. A young woman’s blogging account of being diagnosed, treated and living with leukemia with her 20s.