pulse_blog_banner_200x216pixels Day of Reckoning by Suzanne Minor Our patients' decisions are their own...but it may make them no more easy to understand. In this essay, Dr. Minor explores her own reactions to, and challenges with, accepting the decisions made by a patient.
Contributor: Adam SapersteinAugust 24, 2015Topics: / / Keywords: / / / /
Pulse Imagine by Linda Koebner Besarta and her family fled Kosovo when she was 10. She was diagnosed with Friederich’s ataxia when she was 11. Now she has “aged out” of a system that helped her and her family cope with her illness. A narrative of illness… written 3 sentences at a time.
Contributor: Adam SapersteinJanuary 31, 2015Topics: Keywords: / / / / / / /
NPR "Still Point": A Mediation on Mothering a Dying Child - Emily Rapp The struggles and emotions experienced parenting a child with Tay-Sachs disease.
Contributor: AdminJanuary 8, 2015Topics: / Keywords: / / / / / / / / /