The Lens of Genetic Disease This is a poignant blog written by a mom with a daughter diagnosed with Batten disease. The incredible part is that her daughter and another of the girls mentioned in the blog were treated with a rapid gene- therapy and may be cured of their disease. This is a reflection on that journey, the hope, and the worry.
Topics: Grief / Perspective
The Problem with Race-Based Medicine (14min) Global scholar, University of Pennsylvania civil rights sociologist, and law professor Dorothy Roberts exposes the myths of race-based medicine.
People Like Us: How Our Identities Shape Health And Educational Success (35min) A Hidden Brain podcast (35 min) looking at how we scan every patient situation - both as a the physician and the patient - looking for safety and connection. Race turns out to be an important factor in how these are established.
I'll Get That Checked Out Soon In busy professional lives, and in an area where burnout is a hot-button item, our lack of self-care can lead to health care practitioners not really practicing what they preach. The consequences can be fatal.
Topics: Burnout / Mindfulness / PerspectiveKeywords: burnout / perspective / self-care
Myths about physical racial differences were used to justify slavery — and are still believed by doctors today.
The Curbsiders: LGBT health Build your knowledge base to improve primary care for LGBT patients! This episode is chock full of clinical pearls and updates for LGBT health from SGIM presenters, Dr. Jenny Siegel (Boston University) and Dr. Megan McNamara (Louis Stokes Cleveland VAMC). They define common gender identity terms and provide tips on how to take a sexual history. You’ll develop an approach to the unique clinical concerns of LGBT patients and learn how to phrase medical information in a gender neutral framework. This is a must listen episode for all health care providers!
Topics: LGBT / Sexuality
Wit by Margaret Edson A powerful investigation into the aspects of life that make it worth living, the nuances of relationships and how one’s approach to life and death can change throughout the process of “living out” one’s end.
Can Your Child’s Identity Shape Yours? by Andrew Solomon Listen to Andrew Soloman’s ideas about how one can find profound meaning in differences and how they can shape one’s identity. “As long as you experience your condition as an illness, it’s your prison. Once you experience it as an identity it’s the source of your freedom.”
In the Running by Diane Van Deren / Mark Phillips Interview Diane Van Deren is one of the best ultra-runners in the world, and it all started with a seizure.
The Day I Started Lying to Ruth by Peter B. Bach An oncologist’s account of losing his wife to cancer. An intimate look at how healthcare, relationships, personal desires, expectations, and promises all intersect and influence our lives.
Suleika Jaouad “Health is about adding life to years, not years to life.” A personal website discussing various events, interactions, struggles and celebrations living with cancer and surviving afterwards.
Life, Interrupted by Suleika Jaouad Cancer is not a gift, especially not at 22. But it can change you, prompting you to learn a few things along the way. A young woman’s blogging account of being diagnosed, treated and living with leukemia with her 20s.
Conundrum by Matthew Hirschtritt A third-year medical student’s narrative of wrestling with the discord between the patient he pictured when reading her medical record and the patient he met after walking into the exam room. A contemplation of chronic illness and hidden strengths.
Beauty is in the Eye of the Beholder by Dr. Nancy Snyderman Photographer Rick Guidotti is a renowned fashion photographer who has worked in Milan, Paris and New York. Fifteen years ago, he saw the images of patients in medical textbooks and the experience changed his life.